Understanding the impact of PNH: an inside look at the daily lives of PNH patients
For people living with paroxysmal nocturnal hemoglobinuria (PNH), the burden of illness can impact all aspects of their lives. Many patients have become accustomed to living with ongoing PNH symptoms and may claim they feel just fine. We invite you to take a step into their living rooms and see what “fine” may actually look like.1
Visit Susan’s
living room
Susan is a newly diagnosed PNH patient who has not started complement inhibitor treatment and is becoming burdened by her symptoms.*
Visit Jim’s
living room
Jim is a PNH patient who has been taking complement component 5 inhibitor (C5i) treatment for a few years but is still experiencing fatigue and low hemoglobin levels.*
Visit Roberto’s
living room
Roberto is a PNH patient who has been on C5i treatment for about a year but is still dependent on regular transfusions and has experienced thrombosis.*
Reference: 1. Dingli D, Matos JE, Lehrhaupt K, et al. The burden of illness in patients with paroxysmal nocturnal hemoglobinuria receiving treatment with the C5-inhibitors eculizumab or ravulizumab: results from a US patient survey. Ann Hematol. 2022;101(2):251-263.
