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SusanC5i-naïve

SusanC5i-naïve

Susan is a working mother to 2 young girls trying to balance her work and family, while struggling with her newly received PNH diagnosis.*

LAB VALUES

Hemoglobin level:

7.9 g/dL

Transfusion history:

1 transfusion over the past 6 months

LDH:

2130 U/L (9.4 x ULN)

ARC:

227 x 109 cells/L (1.9 x ULN)

FACIT-Fatigue score:

28/52Her levels of fatigue have forced
her to switch to part-time work.

Bilirubin:

2.2 mg/dL

ARC=absolute reticulocyte count; C5i=complement component 5 inhibitor; FACIT=Functional Assessment of Chronic Illness Therapy; LDH=lactate dehydrogenase; PNH=paroxysmal nocturnal hemoglobinuria; ULN=upper limit of normal.

The FACIT-Fatigue scale is measured from 0 to 52, with an average score of 43.6 for the general population.1

Reference: 1. Desai D, Fishman J, Zhang X. Rapid time to a clinically meaningful response in FACIT-Fatigue scores with pegcetacoplan in patients with paroxysmal nocturnal hemoglobinuria: a Kaplan–Meier analysis from the PEGASUS trial. Clin Lymphoma Myeloma Leuk. 2022;(suppl 2):S306. Society of Hematologic Oncology abstract MDS-136.

Susan’s clock
Susan’s desk
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